Campaign for ME/CFS and FM Services in Berkshire
The Reading Area ME Support Group and the West Berks ME & FM Group are working together to help fulfil the similar unmet needs of all their members. The Reading & Wokingham Fibromyalgia Support Groups are now joining this campaign.
The campaign is needed because:
- There are no specialist services for either ME/CFS or FM in Berkshire - this is a huge unmet need.
- A Pilot scheme for ME/CFS was promised but never started.
- The Berkshire Priority statement on CFS has been due for renewal for 4 years, but especially since the publication of NICE Guideline 53 on CFS/ME in August 2007.
- There is no Priority Statement on FM.
- ME/CFS and FM are both neurological conditions, so they should be included as part of the Berkshire West PCT’s Commissioning Strategy which lists neurological conditions as a priority.
- They are now the only neurological conditions with no specialist services in Berkshire.
For petitions asking the MPs of Berkshire to ensure that appropriate provision is made for the diagnosis, management and treatment of ME-CFS and Fibromyalgia (FM), within our area and without private payment, click here.
For a letter to send to your Berkshire MP, click here.
For information about the needs assessment into people with ME/CFS in Berkshire - and the lack of an assessment for people with fibro - see this post.
