For Information on Fibromyalgia (Fibro), please see the FibroAction website.
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Help FibroAction help the
2 million plus people affected
by Fibromyalgia Syndrome
in the UK
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Living with Fibromyalgia
Living with Fibromyalgia
January 4, 2008 at 2:08 pm
After suffering with aches and pains everywhere for several years,lots of hospital visits,lots of physio including hydrotherapy and much more!.August 2006 I was diagnosed with Fibromyalgia….at last someone had listerned to me…I am now taking Lyrica(pregabalin)which helps alot….I hope this help all you other suffers but don’t leave it,there is help out there..Good luck.
My Mother was the one who gave me Bianca Embley’s info;read in a daily paper.I hope you can send me anything you think might help. Thanks Jackie.
January 4, 2008 at 2:12 pm
For a start, check the European Guidelines of the Management of FM (available in the sidebar on the left).
March 5, 2008 at 12:16 am
[...] Living With Fibromyalgia [...]
April 3, 2008 at 8:12 am
hi.
my big brother suffers terribly with fm.
he has had no medical intervention and is just seeing his life slipping away from him. no social life,no partner just a daily dose of pain and discomfort.
he has lost hope as his useless doctor thinks he is faking! he has lost so much weight and you can see the pain on his face its so bad. is there anything anyone can suggest that may help. he is becoming more and more withdrawn from the world and has lost all hope.
April 3, 2008 at 8:16 am
Jessie, I’ll email you.
March 8, 2009 at 10:04 pm
Fantastic job you are doing, where is the link about managing fibro?
August 21, 2009 at 6:19 pm
Hi! I am also taking Lyrica. Hoever, for me, it stops doing it’s job after a few months, if I increase the dosage I am a painfully walking Zombie ?! I Hope this is not the case for all. I will be asking for THC at my next appointment as I have tried everything they will give me wich is not a hell of a lot.
They ( the pain clinic ) are so scared you should get hooked on something; they’d rather you suffer or get your head checked as we all know we are faking it
Keep up your spirits and lets make the world know that we want the pain to go away period.
Pierre Véronneau
Montréal Québec
February 19, 2010 at 4:03 am
I don’t know if you are aware of the breakthroughs in our understanding of fibromyalgia as a neurological condition, but I’m convinced that transneural degeneration of central areas of the brain cause dysautonomia. Many functional neurologists are treating this brain problem with exercise and oxygen therapy, and including treatment to “rewire” dysfunctional areas of the brain, to try and regulate the autonomic nervous system. It is one of the most important breakthroughs in treating chronic pain conditions like fibromaylgia in recent history.