March 27, 2008
Berkshire UK Needs Assessment for people with ME/CFS
Posted by linzworld under Local campaign | Tags: assessment, Berkshire, CFS, Fibro, Fibromyalgia, FM, FMS, ME, petition, questionnaire, uk |
The needs assessment that was being done by the Berkshire East PCT has now been extended to cover Berkshire wide. If you live in Berkshire, UK and have had a ME or CFS diagnosis, then please do take the time to fill out the short questionnaire and send it using email or freepost back to the NHS.
The accompanying letter can be found here: Berkshire PCT ME CFS Needs Assessment Letter
The questionnaire can be found here: Berkshire PCT ME CFS Needs Assessment
The definitions used in the questionnaire can be found here: Berkshire PCT ME CFS Needs Assessment Definitions
The voluntary groups who have been campaigning for services for both ME/CFS patients and Fibro patients in Berkshire (the West Berks ME & FM Group, the Reading Area ME Support Group and the Reading & Wokingham Fibromyalgia Support groups) has asked that Fibro be considered in the needs assessment, however this is now definitely not happening. If you live in Berkshire, UK and would like to send a letter to your MP about Fibro being left out of the needs assessment, then you can get a standard letter here that simply needs you to add your name and address. You can find details of who your MP is and where to send the letter here.
To petition your Berkshire MP about the lack of services of people with ME/CFS or Fibro, you can download a petition to be filled in and posted back to the support groups from this page here.
